OUR CALL TO ACTION
One afternoon my son Dusty and I were talking about how cool it would be
to finally find a cure for Duchenne, so that boys like him could live longer lives.
We reflected on the last few years and realized that what we needed most was global awareness and money for research. We talked about how the world comes together for the victims of earthquakes, floods and tsunamis, and supports various environmental causes, our oceans and rainforests.
We decided that moving forward, we are stronger if we all come together as humans, as a force, as a coalition, bringing together not just the world’s Duchenne organizations, but everyone. We need to focus on changing the course, taking our quest to another level.
Duchenne IS a curable disease. This is a call to action. Now is the time to find a cure for Duchenne, so that boys like Dusty can live longer lives.
Our mission is to raise global awareness for Duchenne muscular dystrophy, to fund research and to find a cure for Duchenne.
Our mission is to raise global awareness for Duchenne muscular dystrophy, to fund research and to find a cure for Duchenne.
A shift is happening. We need to slow down and look within. It is time to care about one another, as nations, as people, as individuals. It is time to open our hearts and to have compassion.
We need to take responsibility for what we can change. Taking action is the only way to change the future.
We need to realize that we have more in common than our differences. Our hopes and dreams are bound together. We are all in this together.
Duchenne is a curable disease.
We are confronted with the fierce urgency of now. ~Martin Luther King Jr.
Please help us save our sons.
WHAT IS DUCHENNE?
Duchenne is a catastrophic, progressive muscle wasting disease that affects one in 3,500 boys worldwide.
It robs boys of their ability to walk, breathe, eat and speak, and eventually takes their lives, often before they reach age 20. It leaves their minds unaffected.
WHO WE ARE
Coalition Duchenne brings together organizations from around the world, in a quest to raise global awareness and a cure for Duchenne muscular dystrophy.
We are continually faced with great opportunities which are brilliantly disguised as unsolvable problems. ~Margaret Mead
